Walk for Epidermolysis Bullosa (EB)

The below sites can provide you with more information on EB, as well as link you to some current research news.

EB News and Information

Resource Links

EBMRF (Epidermolysis Bullosa Medical Research Foundation)

www.ebkids.org  - EB Medical Research Foundation (EBMRF) is a volunteer, non-profit foundation dedicated to the support of medical research of EB, its causes, the development of successful treatments, and ultimately its cure.

 

dEBra (Dystrophic Epidermolysis Bullosa Research Association of America)

www.debra.org — the Dystrophic Epidermolysis Bullosa Research Association of America (dEBra) is a non-profit organization dedicated to both promoting research to find new treatments and a cure for EB and providing information and support for people with EB and their families.

News

Toddler inspires parents to organize walk — Community Press, Apr 09